Bio Ethics

Bio Ethics

Genetic Information Nondiscrimination Act (GINA) Finally Becomes a Reality

>> Tuesday, July 01, 2008

Joann Boughman, PhD, American Society of Human Genetics Executive Vice President
The Genetic Information Nondiscrimination Act (GINA) now awaits the President’s signature before it officially becomes federal law.

After more than a decade of discussions about the importance of establishing a federal standard barring discrimination in employment and health insurance on the basis of genetic information, both the U.S. Senate and the House have passed a bill that addresses these key issues in American health policy. The Genetic Information Nondiscrimination Act (GINA) now awaits the President’s signature before it officially becomes federal law.

In summary, the purpose of this legislation is to protect the privacy of Americans’ personal genetic information, and to prevent potential genetic discrimination in decisions about employment and health insurance coverage on the basis of an individual’s genetic testing or screening results.[dari Society Newsletter ASHG, Mei 2008, yang diteruskan oleh Prof. Sultana MH Faradz].

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